{"id":91063,"date":"2019-12-17T12:00:00","date_gmt":"2019-12-17T12:00:00","guid":{"rendered":"https:\/\/dh.durangoherald.com\/tj\/durango-mothers-agonizing-search-for-a-diagnosis-leads-to-lyme-disease\/"},"modified":"2019-12-17T12:00:00","modified_gmt":"2019-12-17T12:00:00","slug":"durango-mothers-agonizing-search-for-a-diagnosis-leads-to-lyme-disease","status":"publish","type":"post","link":"https:\/\/dh.durangoherald.com\/tj\/durango-mothers-agonizing-search-for-a-diagnosis-leads-to-lyme-disease\/","title":{"rendered":"Durango mother\u2019s agonizing search for a diagnosis leads to Lyme disease"},"content":{"rendered":"\n

\"Tasha
Tasha Rayburn became ill after giving birth to her first child. After months of doctors not knowing the cause, she received a proper diagnosis of Lyme disease in June.<\/span>Courtesy of Ryan Bennett<\/span><\/figcaption><\/figure>\n<\/p>

Tasha Rayburn gave birth nearly a year ago and was embracing life as a new mother when her health started to deteriorate fast \u2013 and to make matters worse, no one knew why.<\/p>\n

About three weeks after having her first child, Ashaya, the then-25-year-old from Durango started having chest pains and palpitations. She went to the emergency room, thinking it was a heart attack, but MRI and CAT scans came back negative.<\/p>\n

\u201cThey sent me home with more medicine thinking it was postpartum depression,\u201d she said.<\/p>\n

But her condition only worsened.<\/p>\n

Before she got sick, Rayburn was an active member of the Durango community. She worked as an intensive-care unit nurse at Mercy Regional Medical Center and San Juan Regional Medical Center in Farmington, and also served as a sexual assault nurse examiner.<\/p>\n

Like many in Durango, she took to the mountains and deserts whenever she could. And, more than anything, she looked forward to being a new mom. Over the ensuing weeks, however, her symptoms ravaged her body and mind.<\/p>\n

\"Before
Before getting ill earlier this year, Tasha Rayburn was an active, healthy woman in her 20s. After giving birth and becoming ill with Lyme disease, that changed.<\/span>Courtesy of Ryan Bennett<\/span><\/figcaption><\/figure>\n<\/p>

Previously healthy and active, she now suffered from bouts of anxiety and couldn\u2019t sleep. She said she was in a \u201cbrain fog\u201d and was unable to form thoughts or complete sentences. Eventually, she became bedridden and partially paralyzed, and she went to live with her mother in Pagosa Springs.<\/p>\n

\u201cI felt as if I had no purpose,\u201d she said. \u201cI was forced to quit my job as a nurse and couldn\u2019t take care of myself, let alone care for my child or truly be a mother.\u201d<\/p>\n

And it only got worse: By May, she was experiencing 30 to 40 different ailments \u2013 heart pain, headaches, blurry vision, shortness of breath, difficulty swallowing.<\/p>\n

Rayburn said she went to Mercy\u2019s emergency room four times and Pagosa Springs Medical Center\u2019s ER twice. She saw multiple specialists, including cardiologists, neurologists, gastroenterologists \u2013 all of whom couldn\u2019t find an explanation.<\/p>\n

\u201cEventually, they had written it off as something she was making up in her head,\u201d said Ryan Bennett, her boyfriend.<\/p>\n

On top of not knowing what was making her ill, having people not believe her made things that much harder.<\/p>\n

\u201cThese past few months have literally been a war of all wars,\u201d Rayburn said. \u201cIt\u2019s not inaccurate to state that I\u2019ve literally been fighting for my life every second of every day and night.\u201d<\/p>\n

In June, relief came.<\/p>\n

A friend recommended Rayburn see the naturopathic medical practice of Jennifer Letellier at Be Well Family Medicine in Durango. Letellier quickly recognized Rayburn\u2019s symptoms as those of Lyme disease, which was later confirmed through proper testing.<\/p>\n

Letellier did not return calls seeking comment.<\/p>\n

Lyme disease is a bacterial infection transmitted by the bite of a tick not thought to be located in Colorado.<\/p>\n

\u201cI had even went to an infectious disease specialist at Mercy and brought up the possibility of Lyme,\u201d Rayburn said. \u201cBut they said, \u2018No, it doesn\u2019t exist in Colorado and there\u2019s no way you have it.\u2019\u201d<\/p>\n

But the relief of knowing the cause of her sickness was short-lived. The regimen for treating Lyme disease can be brutal, and Rayburn\u2019s health again worsened.<\/p>\n

\u201cI already felt like I was dying, and then, I literally just felt like I was on death\u2019s doorstep,\u201d she said. \u201cWhen you start killing off Lyme bacteria, they release endotoxins into bloodstream, so typically you will get worse before you get better.\u201d<\/p>\n

\"Tasha
Tasha Rayburn with her child, Ashaya, and her boyfriend, Ryan Bennett. Rayburn said her Lyme disease was so severe she did not recognize her family at times.<\/span>Courtesy of Ryan Bennett<\/span><\/figcaption><\/figure>\n<\/p>

And Rayburn\u2019s late diagnosis made her case more severe. Bacteria had invaded her brain and spinal fluid, explaining the seizures, paralysis, memory loss and even Bell\u2019s palsy. At times, she couldn\u2019t remember who she or her family was.<\/p>\n

Bennett said Rayburn\u2019s mother realized her daughter needed care outside the area, and she found a facility that specializes in Lyme disease at the Sponaugle Wellness Institute in Florida. Rayburn has been receiving full-time treatment from it since Aug. 5.<\/p>\n

\u201cThe doctors there \u2013 they\u2019ve seen so many of these cases before, but they were definitely surprised my symptoms had progressed so quickly to such a severe point,\u201d Rayburn said.<\/p>\n

Specialists at the facility say Lyme disease could have laid dormant in Rayburn for years, but her body was able to fight it off. When she gave birth, however, it\u2019s likely the disease was able to take hold. And, as an added twist, there was mold at her mother\u2019s house in Pagosa Springs, further weakening her immune system.<\/p>\n

It\u2019s anyone\u2019s guess when she was bitten, Rayburn said.<\/p>\n

Health officials in Colorado maintain Lyme disease does not exist in the state.<\/p>\n

A spokeswoman at San Juan Basin Public Health said there have been three cases of the disease in La Plata County in the past 10 years, but that number is likely low because public health case counts are not the same as a clinical diagnoses.<\/p>\n

But patients with Lyme disease say it\u2019s more commonplace in Colorado than previously thought. Since it\u2019s not on doctors\u2019 radar, it\u2019s hurting the chances of detecting the sickness in its early stages.<\/p>\n

Billie Shellist, who was diagnosed with Lyme disease in 2013 and is leader of the Lyme Disease Support Group, told CBS4 (Denver) News in 2016 she suffered from many of the same symptoms<\/a> Rayburn described. But she, too, went years before a proper diagnosis.<\/p>\n

\u201cPeople just don\u2019t really understand what Lyme disease is,\u201d Shellist told CBS4. \u201cI spent five to six years before (being diagnosed) really sick \u2026 going to multiple-type practitioners and no one being able to tell me what\u2019s going on with me.\u201d<\/p>\n

Rayburn\u2019s treatment consists of a lot of IV infusions, antibiotics and other substances to help fight toxins. Rayburn said she feels like she\u2019s made a 50% to 60% recovery, but there\u2019s a long way to go \u2013 about two months of treatment.<\/p>\n

And costs are creating another major obstacle for the family. Rayburn estimates about $250,000 has been spent since January, and it\u2019s going to take another $100,000 to $150,000 to fully recover. In the U.S., health insurance covers only 28 days of antibiotic treatment.<\/p>\n

\u201cPeople all over the country are going bankrupt treating this disease,\u201d Rayburn said.<\/p>\n

The family has created a GoFundMe page to help cover costs<\/a>. As of Monday afternoon, the effort had raised more than $9,000. A fundraiser will also take place from 6 to 10 p.m. Wednesday at The New Sheridan Hotel in Telluride.<\/p>\n

Approaching the one-year mark since giving birth to her first child, and then getting sick, Rayburn said she\u2019s keeping positive, fighting to get healthy again so she can care for her child.<\/p>\n

\u201cI was just so grief-stricken, and still am, because I feel like I missed some of the most precious moments of my daughter\u2019s life,\u201d she said.<\/p>\n

But there is some silver lining. Rayburn said she hopes her own experience will help educate people who are sick and may have Lyme disease.<\/p>\n

\u201cSince getting ill, there was only an abyss of darkness in my mind as my body was being ravaged,\u201d she said. \u201cI want others who may be suffering to know that they, too, can overcome this with appropriate treatment and resources; and knowing what the problem is, is the first step.\u201d<\/p>\n

jromeo@durangoherald.com<\/a><\/em><\/p>\n

\n

To help<\/h4>\n

Tasha Rayburn and Ryan Bennett have created a GoFundMe page to help cover costs associated with Rayburn\u2019s recovery from Lyme disease. The GoFundMe page can be viewed by visiting GoFundMe.com and searching for \u201cTasha Rayburn.\u201d<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Mother\u2019s journey through health network leads to rare diagnosis<\/p>\n","protected":false},"author":1,"featured_media":91064,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[],"tags":[21,13,28,61,1346,68,29,668,686],"naviga_topic":[],"class_list":["post-91063","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","tag-cortez","tag-frontpage-lead","tag-headlines","tag-health","tag-health-insurance","tag-mercy-regional-medical-center","tag-newsletter","tag-public-health","tag-san-juan-basin-health-department"],"acf":[],"author_name":"dh_admin","_links":{"self":[{"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/posts\/91063","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/comments?post=91063"}],"version-history":[{"count":0,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/posts\/91063\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/media\/91064"}],"wp:attachment":[{"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/media?parent=91063"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/categories?post=91063"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/tags?post=91063"},{"taxonomy":"naviga_topic","embeddable":true,"href":"https:\/\/dh.durangoherald.com\/tj\/wp-json\/wp\/v2\/naviga_topic?post=91063"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}